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NobbyR
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NobbyR
Joined: 10 Jul 2011
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Posted Wed Apr 2, 2014, 4:19am
Subject: Re: It has been a looooong day.
 

I'm so glad to hear that your wife's recovering, and I hope you and your family can relax a bit now. Give my regards to Cyndy, even though we haven't met.

 
***
"This drink of the Satan is so delicious that it would be a shame to leave it to the infidels." (Pope Clement VIII on coffee, when he was urged to ban the beverage)
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ronburleson
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Joined: 3 May 2012
Posts: 19
Location: Corona, Ca.
Expertise: Just starting

Posted Wed Apr 2, 2014, 6:41am
Subject: Re: It has been a looooong day.
 

That is great news Wayne! I am glad to hear she is home and making improvements. I'll be praying for you and her.

Ron
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calblacksmith
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calblacksmith
Joined: 25 Nov 2007
Posts: 7,864
Location: Riverside, Ca, U.S.A.
Expertise: I live coffee

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Posted Fri Apr 4, 2014, 7:24am
Subject: Re: It has been a looooong day.
 

Steve, Norbert, Ron

Thanks, yes I will pass along the words and feelings.

The PT nurse seems to think the transition to cane from walker will be sooner rather than later due to how well she is doing. I will need to get her another cane though, the one she has is for a right hand (nice molded plastic to contour to the right hand, not so much on the left side!) I might just turn her a new one on the lathe, OR not, depending on how much time I have.

Ron, the finger is all done healing, it was a nasty slice but the "flap" went back with only a little skin around the edges dying off and needing to be replaced. It most likely should have had a stich to hold it together as it took 2 days to stop bleeding if disturbed but with pressure from a good finger tip bandage, there is only a slight mark now all is well in the end LOL!

Thanks for coming over, it was nice to have the company and it is really nice to try your home roasts again, gooooooood stuff :D

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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ronburleson
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Joined: 3 May 2012
Posts: 19
Location: Corona, Ca.
Expertise: Just starting

Posted Sat Apr 5, 2014, 9:18pm
Subject: Re: It has been a looooong day.
 

Glad the finger is better. Even happier your wife is coming along so well. We will have it get together again soon. Next time I'll roast up some beans with more chocolate less berries.

Take care,
Ron
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calblacksmith
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calblacksmith
Joined: 25 Nov 2007
Posts: 7,864
Location: Riverside, Ca, U.S.A.
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Espresso: ECM Vene. A1, La Cimbali M32
Grinder: Azkoyen Capriccio, Major
Vac Pot: 40s era Silex
Drip: Msl. Com. brewers
Roaster: gave it a try, decided no
Posted Tue Apr 8, 2014, 6:22am
Subject: Re: It has been a looooong day.
 

No worries, I really am enjoying the gifts you brought, very nice, it is a nice change from my "work a day routine" LOL!

Cyndy is now walking around the house without the aid of a walker, using the walls for support but getting around better none the less. She even took it upon herself to do laundry, hey I hate it and let it pile up until I no longer had much left clean to wear, I was going to do it but she could not stand it any longer! She should be doing her excerizes and she isn't. I even found a weight for her leg that starts at 1/2 pound, practically nothing to aid getting things going again but I am going to need to devote more time one on one I guess to help her with it.

I thank everyone who has prayed and sent best wishes, every last one of them was (is) welcomed and has had a positive effect on the situation, thanks again!

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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chex
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chex
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Posted Thu Apr 17, 2014, 7:28am
Subject: Re: It has been a looooong day.
 

Hi Wayne, I'm glad to hear Cyndy is doing better. I've tried calling the other day, but I think it was via your cell phone number. I'll try again after school and try to get your land line. Take care buddy.
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cerridwyn
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cerridwyn
Joined: 6 Jun 2010
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Location: Inland Empire California
Expertise: I live coffee
Posted Sun Apr 20, 2014, 4:52pm
Subject: Re: It has been a looooong day.
 

Hi Wayne.

I rarely come in this forum so just saw this.

Tell her the physical terrorist (they call themselves that) really does get off on her pain (just kidding, maybe) er progress. They celebrate right along with you. (I've worked in home health a long time, and watched them cheer.) Get that cane though, wall walking is not really safe and is a good way to fall when you least expect it.

Hope you had a peaceful Easter.

Blessings

Susan, RN

 
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sweaner
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sweaner
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Posted Sun Apr 20, 2014, 6:39pm
Subject: Re: It has been a looooong day.
 

Wayne, I too just noticed this post. I am a neurologist, and have never seen anything quite like that scan. Have they ever come up with a true diagnosis?

I am so happy she is doing well.

 
-Scott
“Coffee - the favorite drink of the civilized world.”
Thomas Jefferson
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calblacksmith
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calblacksmith
Joined: 25 Nov 2007
Posts: 7,864
Location: Riverside, Ca, U.S.A.
Expertise: I live coffee

Espresso: ECM Vene. A1, La Cimbali M32
Grinder: Azkoyen Capriccio, Major
Vac Pot: 40s era Silex
Drip: Msl. Com. brewers
Roaster: gave it a try, decided no
Posted Mon Apr 21, 2014, 8:03am
Subject: Re: It has been a looooong day.
 

Scott, hi, don't sweat it, I miss a whole lot of posts myself and it my job.... :D

Like I said, this has been going on for 30 years for us as of the 20th of Apr.

Her case has been presented at at least one Neuro convention that I know of, possibly more. At that presentation, a question from the audience was "how old was she when she died?"

Well she is still alive and doing as well as can be expected with her "issues" well better than would be expected actually.
She is able to do personal care for herself, bathing, dressing etc. She is also able to do tasks that she has been doing for a long time such as laundry and other chores such as that. Her balance has returned for the most part and she uses a cane for stability and the use of her right side  has returned and is getting stronger with PT.

She has some communication issues, mostly not being able to remember words for things so she is often frustrated when asking for something or trying to communicate something.

She has a good attitude, and is on anti seizure meds, Teg and Dia.

They have gone through most every possible rare disease, syndrome, parasite etc and none fully fit and our neurologist (Dr Randolf Shey)  has come to peace that there is no name for what she has and we need to treat the issues as they come up. He is known to the staff of Long Beach Memorial med ctr. as being very good. I have no idea how much further his accolades travel in the med world, I know there are a LOT of doctors out there! We have been with him since the start though and we are still going strong!

In addition to what is in the scan, she has other cysts and multiple calcium deposits too, including one cyst in the brain stem that has a shunt in it, that was a scary operation, a very sensitive place to be cutting. The survival odds on that surgery was only 40%, less without damage but she came through fine thanks to some very steady hands on the doctors part and the grace of God.

When the image CD was given to us to bring to the doctor who did the last operation, I made a full copy of the scan. It is quite impressive indeed.

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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NobbyR
Senior Member
NobbyR
Joined: 10 Jul 2011
Posts: 2,051
Location: Germany
Expertise: I love coffee

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Posted Wed Apr 30, 2014, 5:23am
Subject: Re: It has been a looooong day.
 

calblacksmith Said:

She is able to do personal care for herself, bathing, dressing etc. She is also able to do tasks that she has been doing for a long time such as laundry and other chores such as that. Her balance has returned for the most part and she uses a cane for stability and the use of her right side  has returned and is getting stronger with PT.

She has some communication issues, mostly not being able to remember words for things so she is often frustrated when asking for something or trying to communicate something.

She has a good attitude, and is on anti seizure meds, Teg and Dia.

Posted April 21, 2014 link

Glad to here your wifes keeps recuperating.

calblacksmith Said:

and our neurologist (Dr Randolf Shey)  has come to peace that there is no name for what she has

Posted April 21, 2014 link

So there's his chance to conceive a syndrome and to enter the annals of medicine.  ;-)

 
***
"This drink of the Satan is so delicious that it would be a shame to leave it to the infidels." (Pope Clement VIII on coffee, when he was urged to ban the beverage)
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