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It has been a looooong day.
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calblacksmith
Moderator
calblacksmith
Joined: 25 Nov 2007
Posts: 8,025
Location: Riverside, Ca, U.S.A.
Expertise: I live coffee

Espresso: ECM Vene. A1, La Cimbali M32
Grinder: Azkoyen Capriccio, Major
Vac Pot: 40s era Silex
Drip: Msl. Com. brewers
Roaster: gave it a try, decided no
Posted Tue May 6, 2014, 12:21pm
Subject: Re: It has been a looooong day.
 

LOL! I will let him take all the credit, in exchange for a cure!

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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calblacksmith
Moderator
calblacksmith
Joined: 25 Nov 2007
Posts: 8,025
Location: Riverside, Ca, U.S.A.
Expertise: I live coffee

Espresso: ECM Vene. A1, La Cimbali M32
Grinder: Azkoyen Capriccio, Major
Vac Pot: 40s era Silex
Drip: Msl. Com. brewers
Roaster: gave it a try, decided no
Posted Tue Jul 22, 2014, 8:16am
Subject: Re: It has been a looooong day.
 

Well, an update after a doc visit yesterday.
As far as this surgery goes, all looks well.

BUT

(You knew there was going to be a but did't you :D)

she has been getting worse. After the last surgery, things were pretty good, but over the months since, she has degraded to about 3/4 of where she was before. Communication is very bad, she has walking issues, even things like taking pills sometimes she needs to be reminded to put the pill in the mouth, now take a drink of water and swallow.

Turning the TV on (a single push of the remote button) often is beyond her understanding.

The doc was happy about his surgery but when we described the continued downward trend, he went back and took another look at the scans done last Friday. There has been a buildup of fluid around the brain (hydrocephalus).
Click Here (www.ninds.nih.gov)

So, now as soon as the doc can arrange things, we will have a MRI scan to get a better look and more surgery to follow ASAP.

She has a shunt (drain tube) that has been been draining the fluid for years and though it seems that the part in the brain is still working (but less than in a great place to do the job now, things have shifted a bit) it is clogged where it drains into the stomach cavity. Due to it's age in her, it has become pretty much fused into place so removal is not an option. We will know more after the scans but most likely course of action at this point is to just cut the drain tube close to the brain and install a whole new drain setup to take over the job that the old one is not performing anymore.

My plant is going to cease operation in about a year and with it, I will be out of a job. Thank you for canceling the program Mr President. Anyway, we are trying to get everything done before we have to take a big downgrade in our health insurance at a substantial price increase.

More later :D

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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emradguy
Senior Member
emradguy
Joined: 31 Mar 2011
Posts: 3,288
Location: Houston
Expertise: I live coffee

Espresso: Duetto II; Twist v2
Grinder: M Major, Macap M4, Pharos,...
Drip: Espro presses; Aeropress
Roaster: H-B "List of Favorites"
Posted Wed Jul 23, 2014, 10:50am
Subject: Re: It has been a looooong day.
 

Wayne, thanks for the update. I'm sorry to hear Cyndy has continue to decline. I hope all goes well and that the shunt revision will help her regain some ground. As you probably know, there are several options for revising the malfunctioning shunt, and I'm sure you and your doctors will discuss them and choose the best option to proceed.

I wish I had a need for a master welder inspector. I hope all turns out better than expected in that regard.

Be well, my friend...

Ron

 
.
Always remember the most important thing is what ends up in your cup!
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calblacksmith
Moderator
calblacksmith
Joined: 25 Nov 2007
Posts: 8,025
Location: Riverside, Ca, U.S.A.
Expertise: I live coffee

Espresso: ECM Vene. A1, La Cimbali M32
Grinder: Azkoyen Capriccio, Major
Vac Pot: 40s era Silex
Drip: Msl. Com. brewers
Roaster: gave it a try, decided no
Posted Thu Jul 24, 2014, 8:48am
Subject: Re: It has been a looooong day.
 

Thank you Ron.

She has a MRI scheduled for this afternoon and another doctor apt on Monday so we will know more then but a shunt revision is just one more in a long series for her.

For work, I do have a couple of offers from customers I visit for my current employment. No one can make anything official until after the closure here so there are a few options out there in addition to retirement.

On a brighter note... my car died so I had to buy another one LOL. HEY it really is a silver lining though, I have been dreaming about what I bought since I was in high school, some 40+ years ago. I never thought I could afford it and thought what the heck, it is time :D I will make a new thread on it!

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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jbb
Senior Member
jbb
Joined: 20 Sep 2009
Posts: 135
Location: Riverside, CA
Expertise: Just starting

Espresso: silvia v2, la spaziale s1v1
Grinder: rocky, b. vario
Posted Mon Oct 20, 2014, 10:44pm
Subject: Re: It has been a looooong day.
 

Hi Wayne

I came to your house once to check out your coffee set up (and home theater and high end audio).  It's been awhile.  My espresso journey continues, although its less of a hobby now and more something that i just do routinely every day.  The beans pretty much dictate everything and I play around the edges.  I don't cruise the CG forums too much anymore but did tonight and saw your thread.  

I hope things are going well for you and your wife.  About a year and half ago, we adopted a baby girl who turned out to develop a form of hydrocephalus.  So when I saw that MRI, it, and the accompanying emotions, were familiar to me.  We were lucky in that CSF flow through the brain ventricles turned out to be normal in her case, and the problem was apparently a developmental delay in CSF re-uptake into the circulatory system.  So now she's doing great, meeting all her milestones and being a totally energy draining toddler like she's supposed to be.  i see your last update was in July, and I truly hope you have also arrived at a similarly fortunate place.

Life has these moments of ecstasy and terror.  We live from one and go to the other.  Be well my friend.
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NobbyR
Senior Member
NobbyR
Joined: 10 Jul 2011
Posts: 2,061
Location: Germany
Expertise: I love coffee

Espresso: Poccino Opus One, Ariete
Grinder: Eureka Mignon Istantaneo
Vac Pot: N/A
Drip: Melitta Linea Unica de Luxe
Roaster: N/A
Posted Mon Oct 20, 2014, 11:09pm
Subject: Re: It has been a looooong day.
 

Hi, Wayne!

Somehow the bad news from July slipped my attention. Sorry! Would you like to share some information on Cyndy's state?

 
***
"This drink of the Satan is so delicious that it would be a shame to leave it to the infidels." (Pope Clement VIII on coffee, when he was urged to ban the beverage)
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emradguy
Senior Member
emradguy
Joined: 31 Mar 2011
Posts: 3,288
Location: Houston
Expertise: I live coffee

Espresso: Duetto II; Twist v2
Grinder: M Major, Macap M4, Pharos,...
Drip: Espro presses; Aeropress
Roaster: H-B "List of Favorites"
Posted Tue Oct 21, 2014, 7:34am
Subject: Re: It has been a looooong day.
 

I was wondering the other day too how Cyndy is doing.  and in fact, was planning to send you a private email to inquire.

 
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Always remember the most important thing is what ends up in your cup!
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calblacksmith
Moderator
calblacksmith
Joined: 25 Nov 2007
Posts: 8,025
Location: Riverside, Ca, U.S.A.
Expertise: I live coffee

Espresso: ECM Vene. A1, La Cimbali M32
Grinder: Azkoyen Capriccio, Major
Vac Pot: 40s era Silex
Drip: Msl. Com. brewers
Roaster: gave it a try, decided no
Posted Wed Nov 5, 2014, 2:26pm
Subject: Re: It has been a looooong day.
 

OK, I fell down on the job. To everyone:

About a month ago, we had another surgery. This time it was to replace and install a shunt into a cyst to drain into the stomach cavity. This replaced a tap that was inserted about 25 years ago. The surgery was not smooth but it achieved the goals.
She is in PHYS Therapy to get the right side working better and her speaking is better but will never be seen as "normal" she still has a hard time finding the word she wants to use. She knows what she wants to say but it is difficult to get the words to come out. Most often, a different word comes out, often not even close to what she wanted to say.

So that is one of the reasons I have not been around as much as I was in the past, just looking after the family.

I am sorry to hear about your baby girl. We have been dealing with this for over 30 years and I can tell you that you will reach your own "normal" and you will get comfortable with it.  

The reason for the latest surgery was to try to resolve a possible pressure issue. After the lifesaving surgery in Mar, her speaking was much better and since then it has slowly slipped. This latest surgery reversed a bit of that and it helped a lot to get her back to her post surgery state months ago.
We wanted to get this done while I still have insurance. Due to Government cutbacks, my program was killed and we will be closing the doors about August of 2015. Everyone making the product will be gone. I am lucky enough to be old enough and to have enough years here to be able to retire but the NONaffordable healthcare act will cause a huge altering of the available plans in retierment. So we wanted to "get while the getting is good" so to speak.

Thanks for the concern guys, it really does mean a lot.

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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